Narrative and storytelling projects for the rare disease community — those living with rare disease, and those working to advance treatment and care.
REFLECT: Personal narrative and story coaching
REFRAME: W4R hosted conversations and narrative medicine workshops
ILLUMINATE: Bespoke advocacy and personal projects
In rare, there's always more to the story. Let’s talk about what matters to you.
"California Coffee" or “Urchin Soup” by Adriana Ester Perez
Adriana lives in Burlington, VT, and is fascinated by food and traveling to different countries. She was diagnosed with a rare genetic disorder and autism at the age of 17.
Adriana’s motto – “Don’t let yourself be taken over by other people's expectations.”
Learn more: Adriana’s Website